About this podcast:
In this keynote from Patients as Partners in Clinical Research 2025, Amicus Therapeutics' Chief Patient Advocate, Jayne Gershkowitz, shares how their organization established and embedded patient advocacy into their core structure for lasting impact.
More specifically, Ms Gershkowitz focuses on:
- Defining role standards and recruiting the right talent
- Co-creatin research with patient communities and developing patient-centered outcomes
- Generating metrics that demonstrate the impact on R&D
Speakers
Sabina Kineen
Patient Advocate
Fabry Support & Information Group
Jayne Gershkowitz
Chief Patient Advocate
Amicus Therapeutics
This content was created by The Conference Forum staff. The Fierce editorial team did not contribute to this work.